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Last October, Dylan Riley played Frisbee golf with friends on a sunny afternoon in Oklahoma City. The disc ended up on the road and when he went to retrieve it, he tripped and cut his right knee.


“I’m a klutz,” said Riley, a 31-year-old who worked in construction and welding and hoped to enlist in the military.


His mother Trina White, an infectious disease nurse, examined the cut and thought it looked fine. There was no infection.


But almost two weeks later, Riley woke up feeling like he had the flu. He was sweaty, had a fever and body aches, and he couldn’t stop vomiting. He took a warm bath thinking it would make him feel better. After he got out of the bath, he could no longer move. He screamed for his roommate, who called an ambulance.


He remembers the paramedics talking to him and asking him questions, but then he lost consciousness.


“Everything went black,” Riley says.


He was diagnosed at Baptist Integris Hospital streptococcal toxic shock syndrome – a rare, but very serious, life-threatening infection.


“He entered our hospital seriously ill, almost on the verge of death,” says his doctor. Dr. Bob SchoapsMedical director for specialist critical care and acute mechanical circulatory support at Integris Health Included.


Schoaps explains this streptococcithe same bacteria that causes strep throat had somehow gotten into Riley bloodstream.


Dylan Riley was on life support at Integris Baptist Medical Center.


Trina White





Riley’s organs began to shut down and his heart stopped beating. Doctors had to resuscitate him twice.


“If Dylan had hung around his house for a few more hours, there is a good chance he would not have survived,” says Schoaps. “When we see patients who have the same degree of disease as him, we estimate their risk. chance of survival is 10% or less.”


When Riley’s mother White arrived at the hospital, she remembers the staff asking if she wanted her son to be placed on life support.


“As a mother, this is your worst nightmare,” she says. “I said, ‘Do what you have to do and save my son.’


Riley was placed on a venoarterial ECMO machine to support both cardiac and pulmonary function. The machine kept him alive, but did not circulate oxygen-rich blood to his extremities.


His limbs began to turn black – even the tips of his ears – as the tissue died without circulation. He was also on dialysis for his kidneys.


While Riley was unconscious, doctors told his family he might need amputations.


Riley says he doesn’t remember anything from the first five days in the hospital. It was only when the ECMO machine was removed that he regained consciousness.


“The first thing I remember was looking at my mother and then seeing my father,” he says.


When Riley saw his divorced parents together, he knew something was very wrong. “They don’t often want to share a room,” he says. “I was like, ‘Okay, what happened?’


Dylan Riley at a follow-up appointment after amputations.


Trina White





His family and medical team explained to him that his body was in toxic shock and that he had almost died. From the moment he regained consciousness, his mother began preparing him for the possibility of amputation.


She explained to Riley that although the machine saved his life – and she was so grateful – the tissue loss in his limbs was very severe and he may have to lose a limb.


“I told him anyway that we still loved him and that nothing would change anything.”


White feared she had made the wrong decision by placing him on the life support machine, knowing it could still lead to limb loss. “I was selfish. I wanted my son. I didn’t care what he looked like. I didn’t care what parts we lost,” she says. ‘I was afraid he would blame me for that. I was afraid he would be angry because he is living a life so different from what he knew.”


But a few weeks later, her fears were allayed. “Riley told me, ‘Mom, it doesn’t matter. The important thing is that I’m still here,'” she recalls.


Dylan Riley works on his prosthetic rehabilitation routine.


Trina White





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Meanwhile, he suffered from many strange side effects. “My whole body was peeling, every bit, like a snake would,” he says. His taste buds had even been peeled off his tongue; he didn’t want to eat because the food no longer tasted good.


It took surgeons a few months to determine how many of his limbs they could save.


But Dylan’s humor had always been one of his most important qualities. So when doctors said his legs needed to be amputated, he joked instead of being sad.


“I always try to see the positive in things,” he says. His friends and family cried, but he refused. “When I see them crying, I think, ‘Don’t do that, because you’re going to make me cry.’ And so my first instinct is to always make them laugh, so I sat there joking about the amputations.”


His legs were amputated the week before Christmas 2023. He asked his mother to take a picture of his bandaged legs. “You could see they were cut off,” he says. He posted the photo of his own amputation next to the Gingerbread man from Shrek, who had his legs cut off. “I’ve always had a very dark sense of humor,” he says.


In January, parts of his hands were amputated.


On his right hand he could hold his palm. On his left hand, surgeons were able to save part of his thumb, and part of his index and middle fingers. And fortunately, he says, parts of his hand have been rejuvenated. “I can still pick up a pencil and I can still write,” he says. “But I can’t hold power tools like I used to.”


On Friday, May 17, 2024, he received a prosthetic leg Limbs for life. On Monday he started rehabilitation and learned to tackle stairs and curbs. “I was sweating,” he says. “I wanted to be back sooner. I didn’t want to be one of those people who said, ‘Oh, I feel bad for me.’ I wanted to prove people wrong.”


Dylan Riley and Randy Titony of Limbs for Life.


Trina White





A year later, Riley is determined to get his life back. He returns to some of his favorite hobbies, such as bowling. “It’s not pretty,” he says, laughing. He also plays disc golf with his friends again.


Schoaps says Riley’s “continued optimism” is one of the main reasons he’s doing so well. Riley visits other amputees in the hospital before they lose their limbs to give them hope.


“If anything, I can help them realize that this is not the end – this is just the beginning of their new story,” he says. “You can go two ways: you can move forward and excel, or you can sit back and take a step back.”


He also plans to give motivational speeches to local schoolchildren to teach them the importance of facing adversity and never giving up, no matter the challenge.


“I’m grateful for life,” he says. “It could be so different. My family could have planned a funeral.”



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